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Indian Pediatr 2015;52:
811 |
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HIV Status Non-disclosure in HIV-infected
Families
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LG Saptharishi and Pankaj C Vaidya *
Department of Pediatrics, Advanced Pediatrics Center,
PGIMER, Chandigarh, India.
Email: [email protected]
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We read with interest the recent article by Dwivedi, et al. [1]
on HIV disclosure. The article comprehensively discusses disclosure from
the perspective of an HIV-infected individual and his/her family,
especially children. However, there is another facet of disclosure that
is probably unique to our settings which has not been included in this
write-up. It is the strange problem of hesitation in revelation of their
HIV status by the individuals (or their family members) who are
positive, to the doctors. Sometimes the non-disclosure of a positive-HIV
status may not harm others but intentionally not revealing the
information creates a situation of potential harm to others.
It becomes difficult to ascertain whether ‘voluntary
disclosure’ is the responsibility of the parents or non-disclosure of
their (or their ward’s) HIV status, an unquestionable right to
their privacy. Such scenarios are not very uncommon in our country,
given the social stigma associated with HIV/AIDS. Parents also fear that
revealing the seropositive status to the doctor would put them at risk
of discrimination by the healthcare providers within the hospital or by
others in the society. Though the stigma is understandable, failure to
disclose the seropositive status to the treating physician puts the
entire team of healthcare professionals at risk. Universal precautions
have been devised precisely for such situations but the ground realities
in resource-limited settings are far from ideal. It is also true that
non-disclosure puts the child’s life at-risk by delaying appropriate
diagnosis and prompt treatment.
Worldwide, many countries have invoked legal
provisions to tackle this problem by making non-disclosure a criminal
offence [2]. According to the Indian Penal Code (IPC), acts likely to
spread infection to cause any disease dangerous to life, are punishable
[3]. Laws criminalizing HIV transmission may be applicable when there is
"intentional [and] malicious" transmission [4,5], but only drafting laws
may not solve this problem, as the real solution lies in changing the
societal perception. There is need to work with individuals as well as
in the society, to make every one understand the importance of
disclosing their HIV status to physicians to ensure faster diagnosis,
appropriate treatment as well as the safety of treating team of
healthcare-providers.
This peculiar aspect of HIV non-disclosure needs to
be highlighted on a global platform for creating awareness and seeking
solutions. Empowering the society at large with the right knowledge and
attitude is the way forward.
References
1. Dwivedi P, Patkar P, Beard J. Necessity of
systematic HIV disclosure in HIV-infected families: committed
communities development Trust’s approach and intervention. Indian
Pediatr. 2015;52:375-8.
2. Issues Paper; Criminalization of HIV
Non-disclosure, Exposure and Transmission; High-level Policy
Consultation. Oslo, Norway. Feb 2012. Available from:
www.aidsdatahub.org/dmdocuments/criminalisation_of_
nondisclosure_exposure_and_transmission_issue_
paper_OSLO_2012_cat_19.1.pdf. Accessed June 04, 2015.
3. Jhabwala NH. Indian Penal Code, 13th edition.
Mumbai: C. Jamnadas and Company; 1997. p.156-62.
4. Grover. A Report of the Special Rapporteur on the
right of everyone to the enjoyment of the highest attainable standard of
physical and mental health, United Nations Human Rights Council,
Fourteenth Session (A/HRC/14/20), 27 April 2010. Available from:
www2.ohchr.org/english/bodies/hrcouncil/docs/14session/A.HRC.14.20. pdf.
Accessed June 04, 2015.
5. Chandra PS, Deepthi VS, Manjula V. Disclosure of
HIV infection in South India: Patterns, reasons and reactions. AIDS
Care: Psychological and socio-medical aspects of AIDS/HIV
2003;15:207-15.
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