"In God we trust, all others bring data!"
T
he phrase emphasizes
the importance of ‘data’ to understand a problem, identify the
causes, implement preventive and therapeutic activities and
specially to plan health programs that concern public health
issues. Data collection is an ongoing systematic process of
gathering, analyzing and interpreting various types of
information from relevant sources. Quality assurance and quality
control are two important components of any data. Quality
assurance starts before the data collection and quality control
occurs during and after data collection. The study by Kumar,
et al. [1] published in the current issue of Indian
Pediatrics,the authors evaluated the quality assurance
aspect of a perinatal mortality audit. They evaluated the
available resources including manpower (public and private
hospital staff), protocols (registries, case-sheets,
certification), training and reporting (reports generated)
required for audit of perinatal mortality. The study shows major
gaps in the documentation and reporting of peri-natal deaths.
The reasons for lack of quality assurance on perinatal mortality
audit from the current study include recent introduction of
facility based CDR (child death review) or community based CDR
of neonatal deaths and absence of any policy on still birth
review till recent times [2]. Inclusion of many private
hospitals in the audit also seems to be a major reason for
identifying wider systemic gaps. The present study as well as
other Indian studies have highlighted the poor engagement of
private sector in maternal and infant death reviews, although
the private sector contributes to 43% of deliveries in urban
areas and 22% deliveries (NHFS 4) in rural areas [3].
Perinatal mortality (PMR) includes still
births and early neonatal deaths. As the cause of mortality for
these components are closely related to maternal antenatal and
intrapartum care, PMR is considered one of the important health
indicators of quality of care around delivery. The current PMR
of the country is 36 per 1000 pregnancies (NFHS -4). Although
reduction of PMR is not addressed directly, the health programs
in the country are largely directed to reduce still births and
neonatal deaths. India newborn action plan (INAP) targets to
reduce still birth rate (SBR) and neonatal mortality rate (NMR)
to a single digit by 2030 [4]. Annually approximately 6 lac
still births occur in the country and of these nearly 45% occur
during delivery. As per the estimates published in Lancet in
2011, the SBR in India is 22 per 1000 total births [5]. The
portal of the Health management information system (HMIS)
published by the Ministry of health and family welfare,
Government of India (GOI), reported 3,03,857 stillbirths for the
period 2015-16, which seems to be a gross under-estimate [6]. A
sentinel still-birth surveillance program launched by GOI in
June 2016, not only provides an opportunity to count stillbirths
but also helps to review the circumstances, risk factors and
leading determinants resulting in a still born baby [6]. Data
from this surveillance will be of immense use to meet the India
newborn action plan (INAP) target of single digit SBR by 2030.
However, the known causes of stillbirths are largely addressed
in the existing health and other social sector programs directly
or indirectly. Janani suraksha yojana (JSY) program ensures
registration of all pregnant mothers, encourages antenatal
visits, and institutional delivery with cash incentives. The
success of this program is visible in most states as
institutional deliveries in public sectors hospitals improved
signifi-cantly over the last decade. Also, NFHS-4 revealed that
the proportion of institutional deliveries (public or private)
almost doubled from 39% in 2005-06 to 79% in 2015-16 [7]. The
Dakshata program, a skill oriented, evidence-based, woman- and
baby-friendly training ensures essential interventions that need
to be in place to reduce reproductive, maternal, newborn and
child mortality and morbidity and promote reproductive health.
In addition to JSY and the Dakshata program, the Labour room and
quality improvement initiative (LaQshya) and the Pradhan mantri
surakshit matritva abhiyan (PMSMA) would contribute
significantly to reduce SBR [8].
Neonatal mortality and early neonatal
mortality are adequately addressed in the current health
programs of the country. Facility based death review (FBDR) and
Community based death review (CBDR), under the National health
mission are important policy decisions to account for neonatal
deaths. Appropriate implementation and feedback of these would
help in improving community awareness, reduce the gap between
facility and the pregnant mother, improve services to cater to
the care of newborn and also integrate other social services
such as sanitation, nutrition and availability of potable
drinking water. Navjaat shishu suraksha karyakram (NSSK), a
capacity building program implemented in collaboration with
Indian academy of pediatrics (IAP), backed with a scheme like
Janani shishu suraksha karyakram (JSSK) and state of the art
infrastructure in the form of Special newborn care units
(SNCUs), Newborn stabilization units (NBSUs) and the Newborn
care corners (NBCCs) across the country have contributed
significantly in reducing the newborn deaths due to asphyxia,
prematurity and sepsis [8]. There is still a great need to
improve newborn care further across different tiers of health
facilities to achieve the INAP targets by 2030.
In conclusion, the present paper brings out
glaring deficiencies in documentation, record keeping and
reporting of perinatal deaths as on 2015, but a significant
change is visible in the last five years with the inclusion of
child death review in NHM, and also the start of a sentinel
surveillance of stillbirths. We sincerely hope that the upcoming
National digital health mission (NDHM) will ensure that these
deficiencies wouldn’t exist in coming years [8]. Since neonatal
mortality rate is an INAP indicator, and is closely monitored
under current national programme, there are instances to (mis)classify
early neonatal deaths as stillbirths so as to keep the neonatal
mortality low. This makes a strong case to begin monitoring the
perinatal mortality rate across the country and expand the scope
of CDR to include stillbirths. Nodal officers for CDR should be
made more responsible for perinatal death reviews at state,
district and sub-district Level.
Funding: None; Competing interests:
None stated
References
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Documentation and reporting of derinatal Deaths in two districts
of Karnataka, India: A situational analysis. Indian Pediatr;
2020;57:1006-09.
2. Child Health Division: Ministry of Health
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