edical profession is one of the oldest in the
world. For thousands of years, no one had ever questioned the wisdom of
the doctor. In primitive and even in medieval ages, when primitive
doctors often proffered very dangerous advice to the patient, it was
still considered a good thing. But today we live in an age when we are
facing patients who consider them smarter than us. These individuals
pop-up in our practice every now and then, and seem to know more about
their illness than we do; and also know the remedy and occasionally will
also not hesitate to quarrel with you. Yes, I am speaking about the
‘over-informed patient.’ Though for pediatricians, it means
over-informed parent, I would like to refer to our subject as the
over-informed patient as it corresponds to the larger phenomenon faced
by doctors belonging to all disciplines.
Today’s Over-informed Patient
Today’s over-informed patient is different. Earlier,
such clinical encounters were rare and the information shared by the
parent used to be trivial. But now, parents are better educated and have
more access to the right information. In a sense, this phenomenon is a
new trend, and unless we understand it and learn to deal with it, we
will continue to be flummoxed by it.
In a recent article [1], Karnam and Raghavendra
provide a matrix of four ‘informed patient’ types: (i) completely
informed patient, (ii) misguided patient, (iii) confused
patient, and (iv) misinformed patient. The distinction is made on
the basis of authenticity and relevance of the patient’s knowledge.
The birth of the present-day over-informed patient is
largely due to globalization and digital revolution that swept the world
in past decade. In this scenario, there is a tsunami of information from
various sources. The internet has made information easily available to
all. Advances in mobile technology and tools like WhatsApp have further
changed the dynamics of information-sharing. A sense of empowerment can
be sensed among the people. Each patient who walks through our door
requires and expects information from us in order to understand what has
gone wrong with him, how we intend to help, and what can be done to
accelerate healing. Many patients, before they consult us, consult ‘Dr.
Google’. In February 2017, Google Australia launched a new function in
their search results to help people get the ‘right’ information when
they are sick [2]. According to Google, one in 20 searches on this
platform is health-related. Google’s new health cards include facts
vetted by a team of medical doctors, the company says, and adds: "each
fact has been checked by a panel of at least ten medical doctors at
Google and the Mayo Clinic for accuracy." Under this program, Google
search results will show information for over 900 common health
conditions. The new health feature includes an outline of the condition,
symptoms, diagnosis, and prevalence according to age at the top of
search results. Of course, all this comes with a disclaimer: "what we
present is intended for informational purposes only – and you should
always consult a healthcare professional if you have a medical concern."
A survey on more than 3000 adults in US revealed that one in three
adults (and almost half of college-educated adults) turn to the internet
as a diagnostic tool for themselves or someone else [3].
A Paradigm Shift
Now let’s take a converse view and look at things
from the standpoint of the genesis of our profession. There was a
generation of doctors that were looked upon to be Gods. In those days,
doctors even withheld certain information about diagnosis, prognosis or
treatment options. The present generation is beginning to realize that
doctors are not Gods; rather they are only skilled professionals. So
there is a huge paradigm shift for the doctors and the patients alike.
The tribe of paternalistic doctors has declined over the years because
of legal and cultural changes, but it has not entirely opened the door
to the doctor who interacts with the patient.
When presented with a patient who has educated
himself about his condition, do we cringe or grin? It may be difficult
to work with some (over) informed patients but it would be a mistake to
ignore this emerging trend; and if done, we would only end up as the
proverbial ostrich with its head buried in the sand to escape attention.
It is a wake-up call.
We are now in this thought-provoking transitional
phase between a doctor as God, and a doctor as another skilled
professional. The doctors are waking up to a rude reality that one needs
to be updated or soon one will be outdated. Sustained performance is the
buzzwords in any profession, and doctors are no exception to this global
trend.
Taking A Pragmatic View
Encountering an over-informed patient is always a
challenge to the clinical team. Sometimes it is also tormenting to the
clinician. They ask too many questions and second-guess decisions. They
want explanations and valid justifications, and not just plain reasons.
We see them come armed with papers they have downloaded from the
internet. Once you provide some information, they challenge you, and
some come looking for an argument. Many entertain false hopes and wrong
expectations, some of which we as clinicians are obligated to correct.
Fortunately, such extreme instances are uncommon.
On the whole, the educated patients are generally
receptive for the efforts made by the clinicians to tell them the right
information. Many are quite amenable to learning new things and
discarding their misguided ideas as you walk them through current trends
and new information. The clinician in particular should encourage the
educated patient even in the early vibe-setting days of the therapeutic
relationship. If a patient thoroughly understands his/her diagnosis,
treatment and prognosis, it becomes easier for the clinician to discuss
various viable options with the patient.
Improperly educated patients are a real peril to the
doctor, as the doctor might be creating a misinformed patient who does
not know that he does not know. A doctor who does not or cannot take the
time to correct a patient’s misconceptions about a disease or its
treatment options could find that the patient does not trust the
doctor’s judgment or skills. The doctor might later find that the
patient may have posted negative online reviews based on scattered
misinformation. In the extreme, the fall from bad information to
mistrust to perceived poor performance could tumble into the abyss of
medical malpractice.
The difficulty of the doctors is that they do not
actually get trained to educate people. Few do not like to share their
level of education, literacy or health literacy. This apart, the biggest
factor for the doctor is ‘time’. There is no systematic infrastructure
within a practice to make time for patient education. Financial
disincentive and a lack of training impair a doctor’s ability to
educate. Also my experience is that there are varying degrees of
expertise, comfort, interest, passion and personal involvement of the
doctors in spending time communicating with patients. Some are naturally
good at it and others or not.
Let us also not shy away from the fact that we too
are responsible for giving birth to mistrust. Of late, ongoing conflicts
and controversies in our professional organizations have spilled out
into the media. When the public reads about such issues, they develop a
negative view of doctors in general. Furthermore they become suspicious
of the entire profession regardless of whether the matters reported in
the media are true or not.
The Doctor who Educates
As well-informed patients tip the balance of control
towards themselves, doctors have found themselves playing a new role –
that of a trusted partner. This new kind of relationship is evolving
into a symbiotic partnership where patients are educated and get
involved in decision-making. Sharing of decisions spreads the
responsibility for the outcome, and it is now no more the mundane
positive or negative. There are some simple tips to be followed to
strike a partnership with the patient.
• Adopt a patient as partner model in daily
practice, which sets a tone that facilitates patient education and
consequent trust.
• Communicate with the patients in the language
they understand and are familiar.
• Create your own resources and develop expertise
in patient education. Be mindful of patients with little education
or reading ability or who are not fluent in your language. Prepare
audio-, video- and image-based materials to assist in communication,
as a picture is worth a thousand words.
• Share up-to-date information of websites,
online videos and medical terms your patients are likely to
encounter during treatment process.
• Prepare to talk to patients who object to
treatment options or procedures. If an informed patient makes a
decision not to proceed with your treatment, be courteous, attend
personally and arrange for shifting to a place of his choice at the
earliest.
The advantages are that:
• Patients will have better knowledge of the
options, benefits and risks of treatment.
• Patients will have more realistic expectations
about outcomes.
• Patients and doctors experience less
decision-making conflict between them.
• Patients will have a greater degree of
certainty about what to choose.
• Patients will participate more actively in
decisions about their health.
• Patients will achieve a better balance between
their values and their treatment choices.
Empower patient in partnership with your whole team –
your team colleagues in the specialty, anesthetists, secretary, nursing-
and hospital-staff. Everyone needs to speak one lingo and have one
focus. Training needs to be inculcated on how to have conversations from
the morning weather to the emerging trends in medical practice based on
the specific needs and situation.
Advantage Social Media
What makes the entry of social networking into
medicine so interesting is that many clinicians are perceived as being
resistant to incorporating this tool and altering the status quo.
Platforms such as Twitter and Facebook provide a wide medium in which
patients can record their immediate symptoms and concerns. Furthermore,
some doctors are using these same platforms not only to provide moral
support to their patients, but also to educate patients by directing
them to valid sources of information on diseases and treatment.
We have now grown global. The way forward in today’s
world is through integrating social media and imbibing strategic
management practices in our fields of expertise. Clearly, the power of
social media as a tool for medical education and communication is only
just beginning to show. Using social media to connect with the patients,
one can provide practical health information and dispel myths. As Karnam
and Raghavendra [1] observed: "there is a need for doctors to help
create more informed patients to increase the reach of the doctors in
the virtual world and at the same time maintain the sanctity of the
medical information available. The doctors will therefore, have to
transform themselves into what we call as Hybrid Doctors, where they are
available both in physical and virtual world lending their experiences
to drive proper decision making."
Doctors these days need to integrate many business
skills within their medical practice. The most successful doctors of the
future are likely to be those who have effectively mastered social media
and integrated this into their medical practice. We are now moving in to
process and process controls just as how business managers do it.
So, are we ready to shift gears and switch orbits?
It’s time to open our eyes, ears and minds to train ourselves to educate
the ever increasing population of ‘information-seeking patients’. My
prescription to all professionals is this: Stay informed, Keep abreast
and Learn to learn; remembering George Bernard Shaw’s eternal words,
"those who cannot change their minds cannot change anything."
References