As a Developmental Pediatrician, I find myself dealing not only with
children with autism but also with the family as a whole. In due course
of regular visits, we start developing a mutual bonding with all the
members of family. It is heart-warming to see how our parents mature.
Their journey is definitely an uphill task. Whether it is organizing
finances for therapies, providing intervention, finding the right
resources for their child’s school or societal acceptance, they learn to
tread the hard path gradually.
All along this course are also the other siblings who
are developmentally normal. He or she is gradually also waging a silent
battle within – trying to grapple with reality – and this battle
sometimes goes unnoticed. The following poem that I have penned is
written from the perspective of a little sister who tags along with her
parents and brother for routine visits. It attempts to present her
growing maturity and realistic understanding of her younger brother who
has autism. This poem is dedicated to all siblings of children with
autism.
The Invisible Sibling
I’ m nine, I love being at school and with friends.
Playing, reading, dancing are a few of my hobbies.
I enjoy a laugh, share a secret and sing away
carefree.
My tiny world’s nest is my tightly knit family and my
home.
My little brother is five; he has autism: I heard this
word first when I was six.
Is that why he was fussy over foods, toys and pushed
me away?
Is that why he’d break my favorite doll and didn’t
know how to say sorry?
I thought I didn’t like him; he’s keeping Mummy and
Daddy so busy.
Sometimes they didn’t notice me at all, missed my
important dates at school.
I’d think why am I the invisible sibling? Am I really
so trivial?
I was wrong then, as things cleared soon like a mist
Mummy, Daddy told me he’s different, he loves
differently.
He comes near me and smells me; he means to say he
missed me
I have to give him a high-five to say "I love you" and
not briskly pat his cheek.
He loved the paper plane I made, cause he frisked past
"wheee wheee."
He twiddles my hair round his finger; it means he’s
upset with the noises around.
Mummy, Daddy and I are all learning together.
We learn how to teach him from the sessions he goes
to.
We teach ‘‘I want, I don’t like, give me, please,
more, and thank you."
We are using pictures, photos, cards and timetables;
he’s learning fast, he’s even repeating words after us
now.
I’m sure he will soon learn to say "I love you."
I wish to make you all learn to see him just as we do
See him, read his mind and teach him to read yours.
Our little bundle of joy, he’s more visible to me now
than ever
My family picture: a happy, complete one now!