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Indian Pediatr 2011;48:
515-520 |
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Managing Specific Learning Disability in
Schools in India |
Sunil Karande, Rukhshana Sholapurwala and *Madhuri
Kulkarni
From the Learning Disability Clinic, Department of
Pediatrics, Seth GS Medical College and KEM Hospital, Mumbai, India;
and *Department of Pediatrics, Mumbai Port Trust Hospital; Mumbai, India.
Correspondence to: Dr Sunil Karande, Professor of
Pediatrics & In-Charge Learning Disability Clinic, Department of
Pediatrics, Seth G S Medical College and KEM Hospital, Parel, Mumbai
400012, India.
Email: [email protected]
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Specific learning disability (dyslexia, dysgraphia, and dyscalculia)
afflicts 5-15% of school-going children. Over the last decade; awareness
about this invisible handicap has grown in India. However, much needs to
be done to ensure that each afflicted child gets an opportunity to
achieve his or her full academic potential in regular mainstream
schools. In order to achieve this ideal scenario, all ‘regular’
classroom teachers should be sensitized to suspect, and trained to
screen for this disability when the child is in primary school. School
managements should become proactive to set up resource rooms and employ
special educators to ensure that these children receive regular and
affordable remedial education; and be diligent in ensuring that these
children get the mandatory provisions both during school and board
examinations. Once specific learning disability is recognized as a
disability by the Government of India, these children with the backing
of the Right to Education Act, would be able to benefit significantly.
Key words: Dyslexia; Education; Learning disorders
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T he term ‘learning disability’ was
first coined in 1963 by Dr Samuel Kirk, a psychologist, while delivering a
speech at an education conference held in Chicago [1]. He had worked
extensively with many students who were repeatedly failing in their
examinations but were clearly "not retarded". He observed that these
so-called ‘scholastically backward’ students could be helped by specific
methods of teaching. Till then, such children were being labeled as having
"minimal brain dysfunction" or "strephosymbolia", as they reversed their
letters and made other errors in their spellings [2].
What is Specific Learning Disability?
Specific learning disability (SpLD) is a group of
neurodevelopmental disorders manifesting as persistent difficulties
in learning to efficiently read (dyslexia), write (dysgraphia) or perform
mathematical calculations (dyscalculia) despite normal intelligence,
conventional schooling, intact hearing and vision, adequate motivation and
socio-cultural opportunity [3,4]. Children with SpLD present with academic
problems such as reading slowly and incorrectly, skipping lines while
reading aloud, making repeated spelling mistakes, untidy/illegible
hand-writing with poor sequencing, and inability to perform even simple
mathematics. They invariably fail to achieve school grades at a level that
is matching with their intellectual abilities [3-5]. SpLD afflicts almost
5-15% of school-going children [3-6]. This invisible neurological handicap
is believed to be a result of functional disruption in neural systems
rather than an anatomic problem and is genetically inherited [3-5,7].
Dyslexia afflicts 80% of all children identified as having SpLD [4].
Children with dyslexia have deficits in "phonologic aware-ness", which
consistently distinguish them from those who are not reading-impaired
[4,5].
The functional unit of the phonologic module is the
"phoneme", defined as the smallest discernible segment of speech; for
example, the word "bat" consists of three phonemes: /b/ /ae/ /t/ (buh, aah,
tuh). According to the "phonologic-deficit hypothesis", children with
dyslexia have difficulty developing an awareness that words, both written
and spoken, can be broken down into smaller units of sound and that; in
fact, the letters constituting the printed word represent the sounds heard
in the spoken word [4,5].
Advocacy for Specific Learning Disability
International efforts
In 1964, USA government started financing the training
of teachers to provide ‘remedial education’ to help children with SpLD
continue their education in regular mainstream schools [1]. Subsequently,
in 1969, the USA government passed "The Children with Specific Learning
Disabilities Act" which for the first time officially acknowledged SpLD as
a disability, and ensured their entitlement to "publicly funded" remedial
education services and the benefit of provisions ("accommodations") in
their school curriculum [8]. In
1977, the USA government further strengthened this law by empowering these
children with a "legal right to continue education in regular mainstream
schools". This was done to protect them from discrimination in education
[8].
Efforts in India
In 1996, the Maharashtra government was the first in
India to formally grant children with SpLD the benefit of availing the
necessary provisions ("accommodations") to enable them to complete
education in regular mainstream schools [9]. These provisions comprised
of: (i) extra time for all written tests with spelling mistakes
being overlooked; (ii) employing a writer for children with
dysgraphia; (iii) exemption of a second language (Hindi or Marathi
in an English medium school) and substituting it with a work experience
subject; and (iv) exemption of algebra and geometry and substituting it
with lower grade of mathematics (standard VII) and another work experience
subject. Initially these provisions were only given for the standard IX
and X examinations, but subsequently, in the year 2000, they were given
from standard I to XII [10]. In the
year 2003, the government of Maharashtra extended the facility of
provisions to college courses, and even seats were reserved for these
adolescents in the handicapped category [11]. A 2006 judgment of the
Mumbai High Court has clearly stated that in the state of Maharashtra it
is mandatory for the school and college authorities to provide these
provisions and denial would be regarded as contempt of court and the
school / college authorities would be liable for prosecution [12].
SpLD distorts scores of a student’s performance causing
them to be very low. [13,14]. Provisions are intended to function as a
corrective lens that will deflect the distorted array of observed scores
back to where they ought to be [13,14]. It is aimed that these provisions
will serve to "level the play field" for these students as their academic
performance would now be matching with their intellectual abilities [13,
14]. In a recent study carried out at our clinic, children with SpLD who
availed the benefit of provisions showed a significant improvement in
their academic performance at the Secondary School Certificate board
examination [15]. Their mean total
marks increased by 22%; from 41% before diagnosis of SpLD to 63% after
availing provisions [17].
Since 1999, the National Educational Boards which
conduct the Indian Certificate of Secondary Education (ICSE) and the
Central Board of Secon-dary Education (CBSE) examinations have also
formally granted children with SpLD the benefit of availing the necessary
provisions [5]. In the last decade, other state governments (Karnataka,
Tamil Nadu, Kerala, Gujarat and Goa) too have recognized SpLD as a
disability and granted these children the benefit of availing provisions.
Although there has been progress, there is still a
general lack of awareness about SpLD in a large majority of Indian schools
[16]. SpLD has still not been diagnosed as a disability by many state
governments in India [16]. Also, there is no law in any state of India
which mandates that a school should provide remedial education within its
premises or that these children are entitled to "publicly funded"
affordable remedial education services [16].
Early Diagnosis of SpLD
The classroom teacher plays the pivotal role in
suspecting this condition early as he/she is the first to get an
opportunity to closely observe a child’s academic functioning in the
school. A history of language delay, not attending to the sounds of words
(trouble playing rhyming games with words, or confusing words that sound
alike), along with a family history, are important red flags for dyslexia
in preschool children [4]. An
evaluation for SpLD should be considered for all children presenting with
learning problems in preschool/school or those who get poor marks or
grades in examinations in spite of having seemingly normal intelligence
[3-5,18].
A conclusive diagnosis of SpLD cannot be made until the
child is in the third grade, or about 7-8 years old, as some children are
"normal late developers" and they outgrow their learning problems, unlike
SpLD, which is a life-long disorder [3-5]. However, children in the age
group of 5-7 years who have academic difficulties should also be assessed,
and if they display signs of SpLD on educational assessment should be
considered as "at risk for SpLD" and remedial education started [3-5].
These children need to be retested at 8 years of age to either confirm or
rule out the diagnosis of SpLD [3-5]. A multidisciplinary team comprising
of pediatrician, counselor, clinical psychologist and special educator is
required for diagnosing SpLD.
If SpLD goes undetected, the child’s academic problems
have an adverse impact on his or her quality of life, viz
self-image, peer and family relationships, and social interactions [17].
Unfortunately, in our country, many children with SpLD often remain
undiagnosed because of a general lack of awareness leading to chronic poor
school performance, class detention and even dropping out of school
[5,16].
Remedial Education for SpLD
The cornerstone of treatment of SpLD is remedial
("special") education [3-5,14,19,20]. Because of the central nervous
system’s higher plasticity in early years, it should begin early when the
child is in primary school [3-5]. Using specific teaching strategies and
teaching materials, the Remedial Teacher formulates an Individual
Educational Program to reduce or eliminate the child’s deficiencies in
specific learning areas of reading, writing and mathematics, identified
during the child’s educational assessment [14,19-22]. The child has to
undergo remedial education sessions twice or thrice weekly for a few years
to achieve academic competence.
During these sessions the child with dyslexia undergoes
systematic and highly structured training exercises to learn that words
can be segmented into smaller units of sound ("phoneme awareness"). During
these sessions, the Remedial Teacher explicitly and directly teaches the
following tasks: (i) Phoneme segmentation: what sounds do
you hear in the word pot? What’s the last sound in the word tap?
(ii) Phoneme deletion: What word would be left if the /m/
sound were taken away from mat? (iii) Phoneme matching: Do
pen and pipe start with the same sound? (iv) Phoneme counting:
How many sounds do you hear in the word take? (v) Phoneme
substitution: What word would you have if you changed the /p/ in
pot to /h/? (vi) Blending: What word would you have if
you put these sounds together? /f/ /a/ /t/; (vii) Rhyming:
Tell me as many words as you can that rhyme with the word eat
[3,4,19,20].
Only after phonemic awareness gets developed "phonics
instruction" begins. The child is taught that these sounds ("phonemes")
are linked with specific letters and letter patterns ("phonics"). The goal
of teaching phonics is to link the individual sounds to letters, and to
make that process fluent and automatic, for both reading and spelling. In
other words, phonics teaches students symbol-to-sound and sound-to-symbol.
Spellings are taught through "phonics-based teaching" using color coded
segmentation (e.g., bot/tle), word formation games, and sight word
identification. However, the English language has words like ‘any’,
‘because’, ‘island’, ‘enough’, etc. which are impossible to spell from the
sounds of their letters. These tricky words can be learned as a ‘mnemonic’
by dyslexic children. For example, the word ‘any’ can be remembered by
using the first letters of the ‘silly’ sentence: ‘Ants Never
Yawn’ [3,4,19,20].
The child also practices reading stories; both to apply
newly acquired decoding skills to reading words in context and to
experience reading for meaning. For dysgraphia, the child practices letter
formation within the context of copying exercises using "cursive writing
worksheets" [3,4,19,20]. For dyscalculia, remediation involves rote
learning of arithmetic facts, developing strategies for solving arithmetic
exercises, and developing "number sense" or its access via symbolic
information [14,19-22]. However, even after years of adequate remedial
education, in many children subtle deficiencies in reading, writing, and
mathematical abilities do persist [3-5].
Role of School
Class Teachers
In our country, many classroom teachers in regular
mainstream schools have limited knowledge of SpLD [16, 23]. One of the
main barriers encountered by students with SpLD is the teacher’s lack of
knowledge about their disability and about the rationale of provisions
[24]. Inadequate knowledge leads to negative attitudes toward persons with
disabilities [25]. The Government of India, since 2001, has launched the
Sarva Shiksha Abhiyan ("Education for All" movement), which is a
comprehensive and integrated flagship program to attain universal
elementary education in the country in a mission mode. Launched in
partnership with the state governments, the program aims to provide use-ful
and relevant education to all children, including children with
disabilities ("inclusive education") [26]. The challenge of serving
academically diverse learners in regular classrooms is now an inevitable
part of a classroom teacher’s role [27]. To ensure that classroom teachers
develop appropriate teaching strategies to teach children with SpLD they
need to attend teacher training workshops. The curriculum in every teacher
education program in India should compulsorily include a specific course
on the curriculum and instruction of children with special needs so that
future classroom teachers have the necessary skills to teach children with
SpLD [16,23].
Many children with SpLD typically have problems with
inattention, impulsiveness, and hyperactivity [3-5]. Up to 20% of children
with SpLD have co-morbid Attention-deficit hyper-activity disorder (ADHD)
[3-5]. Simple psycho-educational interventions such as seating the child
near the teacher to minimize classroom distractions, or assigning a
specific teacher to review daily assignments with the child have been
shown to be effective in improving the behavior and academic performance
of children with SpLD and SpLD with co-morbid ADHD [3-5].
Some of the strategies recommended for effec-tive
instruction include: review information about previous lesson on the topic
before beginning the current lesson; clearly state what the student is
expected to learn during the current lesson; describe how the student is
expected to behave during the lesson e.g., tell the child not to talk with
peers if the task given is found to be difficult, but to raise his/her
hands to get the teacher’s attention; state all materials that the child
will need during the lesson e.g., specify that the child needs
crayons, scissors, and colored paper for an art project rather than
leaving the child to figure out on the materials required for the art
lesson [28].
School Counselor
Due to lack of knowledge about SpLD, parents,
especially mothers, undergo lot of stress in coping up with their child’s
academic difficulties, and even in accepting the diagnosis [24,29-31].
Many parents at first are reluctant to allow their child to begin remedial
education and avail the benefit of pro-visions [29]. They prefer tuitions
taken from a private regular teacher which is not the therapy for their
child’s disability [24,29]. Students with SpLD often feel lonely and
different among peers and get teased or bullied by them [24]. The school
counselor plays a crucial role in ensuring that parental and student
stress is effectively minimized by explaining them the nature of the
disability, the importance of remedial education, and the rationale of
provisions. The school counselor should also, in due course, make parents
aware that SpLD is a lifelong disorder. This is important to empower them
to guide their child in selecting an appropriate career for adult life.
Web Table I provides a checklist, which can be
used by the teacher for assessment/screening of SpLD in students.
School Authorities
The school principal and management play a crucial
role. At present, there is an acute shortage of remedial teachers and most
schools do not have a remediation center [5,16]. Many parents cannot
afford the services of remedial teachers working in the private sector. "SpLD-friendly"
schools in Mumbai have started "resource rooms" to ensure that these
children get affordable and regular remedial education. In the "resource
room", students with SpLD receive direct, specialized instruction
individually or in small groups (3 to 5 students per remedial teacher).
Remedial teachers in a resource room focus on particular goals as mandated
by an Individualized Education Program and remediate general education
curriculum. They also emphasize the development of executive skills,
including home-work completion and behavior. Depending on indivi-dual
needs, students usually attend resource rooms three to five times per week
for about 45 minutes per day. Resource rooms have proven to be successful
in significantly improving academic skills of children with SpLD [32-34].
These SpLD-friendly schools also ensure that a proper
register of these children is maintained to monitor their academic
progress and that they get the benefit of provisions in the examinations.
They ensure that the regular classroom teachers undergo training in SpLD
and even encourage some of them take up the additional responsibility of
becoming remedial teachers.
The Right to Education Act and SpLD
Since 1st April 2010, the Government of India has
implemented the Right of Children to Free and Compulsory Education 2009
(RTE Act) which makes education free and compulsory to all children,
including those with disabilities, in the 6-14 years age group [35]. A
recent Parliamentary Committee has suggested that SpLD be included in the
definition of "child with disability" in the Right of Children to Free and
Compulsory Education (Amendment) Bill 2010 [36]. Once SpLD is recognized
as a disability, ample funds from the Sarva Shiksha Abhiyan, which
is the flagship program for implementation of the RTE Act, would become
available for the benefit of children with SpLD [37]. These funds can be
utilized to train classroom teachers, set up resource rooms in schools,
and employ remedial teachers. At present many children with SpLD studying
in non-English (vernacular) medium schools, and especially in rural areas,
are going undetected for non-availability of standardized psychological
and educational tests. Funds from this program could be utilized by
educational institutes to develop standardized psychological and
educational tests in all Indian languages. Funds could also be utilized to
start the undergraduate and postgraduate degree courses for people wanting
to become remedial teachers and special educators.
Acknowledgment: The authors thank Dr SN Oak,
Director (Medical Education & Major Hospitals, Municipal Corporation of
Greater Mumbai) and Dean of Seth GS Medical College and KEM Hospital for
granting permission to publish this manuscript.
Contributors: SK conceived the paper, performed the
literature review and wrote the manuscript; he will act as the guarantor
of the paper. RS and MK discussed the core ideas and revised the
manuscript for important intellectual content. The final manuscript was
approved by all authors.
Funding: The Learning Disability Clinic at our
Institute is partially funded by a charitable grant from Tata Interactive
Systems, Mumbai.
Competing interests: None.
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