ndicators of health, disease and
mortality in Indraprastha children of our country continue to remain
alarmingly poor. Neonatal and infant mortality rates are high, and
preventable diseases – infections, malnutrition and nutrient deficiency
disorders – are very frequent [1,3]. UNICEF annual reports mention that
the health status of our children is worse than some of our neighboring
countries, and comparable to Sub-Saharan African nations [4]. Although
the Government has undertaken several very important measures to address
the various health problems of children, their impact has been limited.
The adoption of Right to Health for children will be crucial for
obtaining adequate health care for children.
Child Rights
India is one of the 193 countries that are
signatories to the United Nations Convention on the Rights of the Child
(UNCRC). These rights include;(i) promoting healthy lives
(addressing survival, nutrition, health care services etc.), (ii)
providing quality education, and (iii) protection against abuse,
exploitation and violence (combating child labor, child trafficking and
child sexual abuse). Ratification of the convention on child rights
obligates a country to integrate its articles into national
constitutions and legislations [5,6]. Thus the laws may address specific
areas such as violence, protection against sexual abuse and trafficking
or introduce guidance and criteria for specific services providing care
for children.
Priorities in Child Rights
The problems of children vary among affluent and low-
and middle-income countries. Thus right to education and health must be
assigned highest priority in developing countries. Among economically
advanced countries, violence against children, sexual abuse and
substance abuse are of greater concern [6]. Realization of socioeconomic
and cultural rights is particularly difficult.
Right to Education
India has adopted the Right to Education (RTE) that
came into force in April 2010,and is meant to provide free and
compulsory primary education to children between 6-14 years of age [8].
India is one of 135 countries to make education a fundamental right of
every child. Shortage of qualified teachers, poor school infrastructure
and various pedagogic aspects are receiving increasing attention.
Whereas it must be the parents’ responsibility to send their children to
school, it is the duty of the civil society and all those who are
educated to ensure that every child goes to school, and oversee the
facilities and functioning of the school.
Right to Health
Whereas the right to health can be regarded as part
of human rights and applicable to all, children constitute the most
neglected segment having been denied adequate health care. Moreover,
children are totally dependent upon adults for all of their needs. They
have no control over adverse health events, proper nutrition, sanitation
and environment. In the absence or a lack of adequate parental care, the
State must be responsible to meet their health needs by making
child-centric policies and sufficient allocation of funds. Indian
judiciary has addressed several issues that include work in hazardous
situations, bonded labor, and employment of children below the age of 14
years. The Supreme Court of India has ruled that the health is the
fundamental right of workers. However, health care of children has not
received sufficient attention.
UNCRC and Child Health
The Committee on the Rights of the Child recognizes
that a majority of mortality, morbidity, and disabilities among children
could be prevented if there were political commitment and sufficient
allocation of resources directed towards the application of available
knowledge and technologies for prevention, treatment and care. Article
24 (1) of the UNCRC [5] mentions that:
"States parties recognize the right of the child to
the enjoyment of the highest attainable standard of health and to
facilities for the treatment of illness and rehabilitation of health.
States parties shall strive to ensure that no child is deprived of his
or her right to access to such health care services."
The Article 24 (2) mentions: "States parties shall
pursue full implementation of this right and in particular, shall take
appropriate measures:
(a) to diminish infant and child
mortality;
(b) to ensure the provision of necessary
medical assistance and health care to all children with emphasis on
the development of primary health care;
(c) to combat disease and malnutrition,
including within the framework of primary health care, through inter
alia, the application of readily available technology and through
the provision of adequate nutritious foods and clean drinking water,
taking into consideration the dangers and risks of environmental
pollution;
(d) to ensure appropriate pre-natal and
post-natal health for mothers;
(e) to ensure that all segments of
society, in particular parents and children, have access to
education and are supported in the use of basic knowledge of child
health and nutrition, the advantages of breastfeeding, hygiene and
environmental sanitation and the prevention of accidents;
(f) to develop preventive health care,
guidance for parents and family planning education and services.
Problems and Health Needs of Children
Twenty-seven million babies are born in our country
every year, a majority in the underprivileged rural and urban
communities, where the parents are not always able to provide adequate
care. Newborn and infant mortality rates are particularly high in such
situations. The needs and care of children are very different at
different ages. The important health needs at various ages can be
considered as follows:
Newborn: Maternal nutrition and adequate
antenatal care. Safe delivery, immediate care of the neonate and
subsequent management during the first 1-3 months.
Infancy and pre-school period:
Feeding and nutrition (supplements of iron, vitamins), immunization,
proper management of common infections (diarrhea, respiratory, skin,
eye, ear, parasitic), and attention to development.
Older children: Adequate nutrition, treatment of
acute and chronic diseases (e.g. tuberculosis, malaria, water
borne diseases).
Adolescents: Physical and emotional health,
treatment of acute and chronic diseases, family life counseling.
Priorities in Child Health Requirements
The difficulties in the health care delivery as well
as institution of preventive measures are greatly compounded by
illiteracy and poverty. Provision of safe water and measures to improve
sanitation and vector control are very difficult to undertake in many
parts of the country. Neonatal survival is greatly dependent upon
antenatal care (particularly nutrition), safe delivery and immediate
neonatal care. These are being tackled by encouraging institutional
deliveries and establishing level II newborn care units. However,
substantial reduction of early neonatal mortality requires early
referral and proper transport of the neonate to tertiary units.
The preschool child in underprivileged communities
(who mostly remains unsupervised as both parents are often working)
suffers from very frequent common illnesses (gastrointestinal and upper
respiratory infections and those of skin, eyes and ears), which are
either ignored or poorly treated. Besides occasionally causing serious
complications, these take a heavy toll on the wellbeing of the child and
adversely impact the nutritional status and physical growth. Such
illnesses need adequate management.
Government Programs Targeting Child Health and
Development
The Integrated Child Development Services (ICDS)
initiative was launched in 1975. The Government is committed to make it
universal. Janani Suraksha Yojna was started in 2005, and
modified in 2011 to include the neonates (now termed Janani Shishu
Suraksha Yojna), to provide free care to pregnant women and sick
neonates [8]. The National Rural Health Mission (NRHM) was launched in
2005 to address the health needs of underserved rural areas. It aims to
establish fully functional, community owned, decentralized health
delivery system with intersect oral coordination at all levels. The
plans include having mobile medical units in unserved areas, mother and
child health wings and free drugs and diagnostic services at district
hospitals, and action on other health determinants such as sanitation,
education and nutrition. In 2013, this mission has been expanded to
include urban areas (urban health mission, both now included as
sub-missions under National Health Mission (8). Rashtriya Bal
Swasthya Karyakram was started in 2013 to screen diseases specific
to childhood – developmental delay, disabilities, birth defects and
deficiencies [9]. This initiative is aimed at screening over 270 million
children of 0-18 years of age. Children diagnosed with illnesses shall
receive follow-up, including surgeries, free of cost under NRHM.
Lack of Success of Governmental Measures
The execution of various Government policies and
implementation of various programs has been unsatisfactory. There is a
failure of macroeconomic structures, poor health care delivery and a
lack of supervision and accountability. The basic health needs of
children have not being met. There is a shortage of hospital beds
(0.7/1000 people in India in comparisons to 3.6 in Srilanka, and 3.8 in
China). Of Primary Health Centers, only 38% have the necessary manpower
and 31% have critical supplies. While 73% of the population is in rural
areas, 75% of the doctors are in cities. More than 90% of rural
population has to travel more than eight Kilometers to access medical
treatment. The "urban–rural divide" is well known. About 70% of the
health care expenditure comes from the private sector, the global being
38% [10]. Provision of sustained access to safe water and sanitation
facilities is very difficult in view of the costs, technological
limitations; societal behavior and customs, illiteracy, and lack of
political will [11]. India has remained behind many developing countries
in terms of healthcare expenditure. Signing of conventions and
intentions has not been matched with adequate actions.
Misinformation, poverty and large family size are
major constraints. Lack of safe water and disposal of solid waste,
failure to observe simple hygienic precautions, and inability to
understand the need to provide appropriate care and avail of services
made freely available by the Government contribute to the high disease
burden and poor growth and development of children. Social evils,
traditional beliefs and harmful practices (e.g. discrimination
against girls, child marriages) are difficult to overcome and will need
substantial attitudinal changes to be dispelled.
Essential Health Care and Urgent Interventions
The components of essential health care for children
(which need to be prioritized), and the necessary interventions are
mentioned in Box I. Such care must be provided to all children
without gender and ethnic discrimination.
Box 1 Components of Essential Health Care
for Children
• Antenatal care of the mother
• Safe delivery and newborn care
• Immunization
• Nutrition support, vitamin and mineral
supplements
• Ambulatory care should be provided free of
cost and made easily accessible, especially for migrant
population. The necessary Laboratory, tests and other
investigations (e.g., X-ray procedures, ultrasonography)
should be carried out without any charge. Primary Health Centers
should be made fully functional. Full complement of staff,
laboratory facilities and supply of drugs should be ensured.
• Strengthen Anganwadi centers.
• Strengthen school health services. Schools
should keep health records and monitor progress. Health
education should be provided at schools.
• Adequate management of diseases such as
tuberculosis, malaria, and acute infections should be carried
out
|
Functional Health Literacy
A crucial measure is to provide functional health
literacy to the illiterate communities. Information about sanitation and
hygiene, feeding, benefits of vaccinations and the dangers if
unvaccinated, management of common problems (e.g., oral
rehydration for diarrhea) can be provided using simple messages,
photographs and modern methods. Traditional adverse practices inimical
to children need to be removed. Primary health workers can be suitably
trained to undertake this task. Once successful, there will be a demand
for services, and a better community participation in the implementation
of various health measures.
The responsibility for proper health care of the
child rests with the parents. If they are not capable (for whatever
reasons) the proximate community, elected representatives (e.g.,
village Panchayat officials, local health authorities) must be made
responsible and accountable. They must oversee the implementation of
various Government programs.
A "child rights approach", rather than a welfare
approach is required to tackle the health problems of children. Right to
Health places a legal obligation upon the government and brings into
focus the elements of responsibility and accountability. Right to Health
will generate demand for health care for children.
Pediatricians and Right to Health
Pediatricians must be regarded as custodians of child
health. They should be aware of the contents of UNCRC and participate in
advocacy for child right [12]. The Indian Academy of Pediatrics (IAP),
besides supporting the development of quality and specialty expertise,
must encourage inclusion of child rights, equity and non- discrimination
in clinical practice, and cooperate with other agencies (National and
International) for wider advocacy. The Indian CANCL Group of IAP, along
with several agencies and non-government organizations (notably the
India Alliance for Child Rights and World vision India) has initiated
the move to demand Right to Health for children. All IAP members,
professional organizations and all others who care for children should
strongly support this demand.
References
1. Infant and Child Mortality in India: Levels
trends and determinants. Available from:www.unicef.org/india/factsheetMedia
(2).pdf. Accessed October15, 2014.
2. Swaminathan S, Rekha B. Pediatric tuberculosis:
Global overview and challenges. Clin Infect Dis. 2010;50: S184-94.
3. World Malaria Report WHO 2012. Available from:
www.who.int/malaria/publicatiosb/world_malaria_
report_2012_summary_en.pdf?ua=1. Accessed October 15, 2014.
4. The State of the World’s Children 2014. Available
from:www.unicef.org/sowc2014/numbers/documents/englishSOWC2014_In
Numbers-28Jan.pdf. Accessed October 15, 2014.
5. United Nations Convention on the Rights of the
Child. General Comment No 15 (2013) on the Right of the Child to the
Enjoyment of the Highest Attainable Standard of Health. Available from:www.refworld.org/docid/51
ef9e134.html.Accessed October 15, 2014.
6. Pemberton S, Gordon D, Nandy S, Pantazis C,
Townsend P. Child rights and child poverty: Can the international frame
work for children’s rights be used to improve child survival rates? PLOS
Med. 2007:4:1567-70.
7. Right of Children to Free and Compulsory
Education. Available from: En.wikipedia.org/wiki/Right_of_
Children_to_Free_and_Compulsory_Education-Act. Accessed October 15,
2014.
8. National Health Mission: A brief note on Janani
Surakhsha Karyakram: The new initiative of Minsitry of Health and Family
Welfare. Available from:nrhm.gov.in/nrhm-components/rmnch—a/maternal-health/janani-shishu-suraksha-yojana.
Accessed October 15, 2014.
9. Rashtriya Bal Swasthya Karyakram (RSBK): Child
health screening and early intervention services. Available from:www.unicef.org/india/7.Rastriya_
Bal_Swaasthya_ Karyakaram.pdf. Accessed October 15, 2014.
10. Dhanjal G. Poor healthcare will paralyse GDP
targets. Inclusion. 2014.
11. Mills A. Health care systems in low- and middle-
income countries. New Engl J Med. 2014;370:552-7.
12. Waterston T, Yilmaz G. Child Rights and Health
Care; International Society for Social Pediatrics and Child Health
(ISSOP): Position Statement. Child: Care, Health and Development.
2013;40:1-3.