One pediatric specialty which can use some light in
the darkness is pediatric oncology. There is also the fact that
pediatric oncologists deal a lot more with veins. This makes it
appropriate that I represent the community, writing about the perils
(and of course the rewards) of being a pediatric oncologist in a light
yet darker vein.
Despite being a different species in the broad genus
of pediatricians, the role of pediatric oncologists is little
understood. On a personal note, try explaining that to your relatives.
"Pediatric Oncology? Do kids get cancer?" -A middle aged uncle who was a
casual visitor to my outpatient clinic asked (despite the board outside
clearly stating the fact that I am a pediatric oncologist)."They do. But
the outcomes are far better compared to adults", I replied. "Must be
very depressing to see kids dying of cancer". "Yes it is. But eight out
of ten kids survive cancer". And the conversation goes on a loop until
one of us gets tired. I chose the road less travelled by and it has made
all the difference in my life - the difference of thinking zebra when
you hear hoof beats (Yes, I borrowed that from the Immunodeficiency
Foundation).
Amongst our fellow pediatricians who are considered
benign, we are looked upon as malignant. In our defense, I like to think
we are malignant only to those who are malignant (now, that sounds like
a punch dialogue in the mass hero movies). We are looked upon as
vampires by the kids (not the cute vampires of the Twilight series, but
an evil Dracula), but console ourselves saying that we return the blood
we draw by the way of repeated transfusions.
The transformation from a pediatrician to a pediatric
oncologist is complete when you start to think like this (I refer to
these as the Scott criteria* after my mentor Dr.Julius Scott, a great
pediatric oncologist): starting piperacillin for febrile neutropenia in
a child with dengue and leukopenia, thinking of bone pains when you see
a child with growing pains, thinking of neutropenic typhilitis in a
child with viral diarrhea, a child with enlarged lymph nodes makes you
think of Hodgkin lymphoma as the first differential diagnosis and a
child with seborrhea, Langerhans Cell Histiocytosis (LCH).
On occasion, our extra vigilant attitude strikes
gold-we become saviors. These include instances like spotting an
innocent looking ear discharge in an infant with seborrhea and working
up for LCH, or picking up a sinister Non Hodgkin Lymphoma of the bone
masquerading as osteomyelitis. That redeems the lost pride until we
encounter the next set of "D" questions.
We are not the only breed of professionals dealing
with oncology who undergo this transformation. The pathologist becomes
the hero when he detects the malignant cells in the seemingly innocuous
‘pus’ of a psoas abscess which is actually a lymphoma. Still, we live in
constant dread of the words ‘inadequate’. Like the infamous duck analogy
(for those who don’t know- please google ‘five doctors on a duck hunt")
where the pathologist says that the specimen was inadequate even when we
think we provided the entire duck. Unlike the clash of egos between
pediatricians and pediatric surgeons, pediatric surgeons and pediatric
oncologists make a happy couple and they know what we want to keep us
happy. ‘The case of the missing node’ is an extremely rare incident when
the draining lymphnodes required to be sampled for staging are missed!
I wish the phrase Primum non nocere (first, to
do no harm) applied to parents as well. The guilt of not being in
control of their kids’ illness makes parents take extreme measures like
pouring gallons of papaya leaf extract juices for thrombocytopenia down
the throats of unwilling kids with leukemia. Then there are parents who
display an ostrich attitude. I recall a case of a child with febrile
neutropenia brought to us leisurely on the third day of fever (when
actually it is a medical emergency). On being questioned, the parent
replied, "You asked us to bring him if he had ‘persistent fever’, but
his fever subsides with every dose of paracetamol". I still cannot
fathom whether it was a case of denial or that I needed to improve my
communication skills.
At the end of the day, kudos to the pediatric
oncologists and pediatricians out there who inspired me to join ‘the
order of the phoenix’, the kids who rise from the ashes after being
through chemotherapy, the parents who have the ‘never ever give up’
attitude and all the others who help them. Blood is thicker than water
and to us- the pediatric oncologists, blood is thicker than normal
saline, and colloids. And the bond we share with the family is sacred.