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Indian Pediatr 2014;51: 607-608 |
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Diagnostic Tool for Neuromotor Impairment for
Primary Care Physician
Health Policy Perspective
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Harish Kumar and Deepti Agrawal
From the UNDP-NIPI Newborn Project, 71 Lodhi Estate,
New Delhi 110 003, India.
Email: [email protected]
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D evelopmental delay refers to children who
experience significant variation in the achievement of expected
milestones for their actual or adjusted age. Developmental delays are
caused by poor birth outcomes, inadequate stimulation, malnutrition,
chronic ill health and other organic problems, psychological and
familial situations, and other environmental factors. While
developmental delay may not be permanent, it can provide a basis for
identifying children who may experience a disability [1]. The average
global prevalence of moderate and severe disability is about 5% in
children aged 0-14 years; it is more common among children in the low-
and middle-income countries [2]. As the Millennium development goal era
comes to an end, the health policy focus post-2015 is widening beyond
survival to include wellbeing and human capital, with increasing
importance of disability, non-communicable diseases and mental health
[3]. Early identification of children with developmental delay or
disabilities allows for timely referral for developmental interventions
as well as diagnostic evaluations and treatment planning [4]. It also
has the potential to provide much needed epidemiological data for
development of policies, strategic planning, identification of key
interventions, and service provision.
The Ministry of Health and Family Welfare, Government
of India, in 2013, launched the national programme for ‘Child Health
Screening and Early Intervention Services’, referred to as Rashtriya
Bal Swasthya Karyakram (RBSK). This program aims to screen children
– throughout the ages 0-18 years – for 4Ds: defects at birth,
deficiencies, diseases, and developmental delays and disabilities.
Neuromotor impairment is included as one of the thirty health conditions
for which identification and early intervention services are to be
provided. Currently, the approach is to conduct screening for children
aged between 6 weeks and 6 years, twice a year, at the community level (Anganwadi
Center) by District Mobile Health Team, comprising of AYUSH-qualified
medical officer and paramedics. Children requiring confirmation of
diagnosis and further treatment are referred to District Early
Intervention Centers (DEIC) that are currently in the process of being
established at the level of district hospitals [5]. DEIC is envisaged as
first referral unit where a team of service providers – consisting of a
pediatrician, medical officer, dentist, staff nurses, technicians and
paramedics – is positioned to respond to child’s immediate needs,
conduct diagnostic tests feasible at secondary level of care, facilitate
linkages to tertiary level facilities where required, and ensure follow
up.
A number of screening tools for assessment of
developmental delay and disability in children in various settings have
been described in literature [6,7]. Under RBSK, tools for screening
children for 4Ds have been included [8]. The INCLEN Diagnostic Tool for
Neuromotor Impairment (INDT-NMI) [9] is a welcome addition to the
limited armamentarium available with providers involved with the
identification and management of children with developmental delays and
disabilities, and has the potential for use ‘at scale’ in the national
program.
INDT-NMI has been validated for use amongst 2-9
year-old children presenting to pediatric neurology outpatient clinic at
tertiary care centers, most likely after screening and referral by
public and private providers. A similar context exists at the DEIC where
medical graduates and/or pediatricians are positioned to carry out basic
level of assessment (tests for neurological impairment, hearing, vision)
and provide physical, occupational and/or speech therapies and
rehabilitative care. Thus, INDT-NMI is timely and relevant in the
programmatic setting as a tool to assist in diagnosis and categorization
of neuromotor impairment at first referral center (DEIC) with high
degree of specificity, making early commencement of interventions
possible. Other merits of the tool developed by INCLEN are short
duration of training, administration time of 20-25 minutes, and no
requirement for special equipment. These are important considerations
given that a large number of primary care physicians and pediatricians
are likely to be involved in provision of services under RBSK.
However, it may not be feasible to use INDT-NMI tool
at community level with the existing level of skills of District Mobile
Health Team and paucity of time due to large number of children
(150-200) screened at one or more sites in a single day. Also INDT-NMI
has been evaluated in tertiary care settings, where graduate physicians
are likely to be better informed and motivated than primary care
physicians in the peripheral public health system. Therefore, a
pragmatic trial, with INDT-NMI being administered by primary care
physicians in field settings with less intense supervision, would
provide a realistic assessment of its application and training
requirements. The results can be used to advocate its use as the
standard diagnostic tool within the national program.
Funding: None; Competing interest: None
stated.
References
1. World Health Organization, UNICEF. Early Childhood
Development & Disability: A Discussion Paper. Geneva: WHO Press; 2012.
2. World Health Organization. The Global Burden of
Disease: 2004 Update. Geneva: World Health Organization Press; 2008.
Available from:
http://www.who.int/healthinfo/global_burden_disease/GBD_report_2004update_part3.pdf.
Accessed July 14, 2014.
3. Lawn J, Blencowe H, Oza S, You D, Lee A, Waiswa P,
et al. Every newborn: progress, priorities, and potential beyond
survival. Lancet. 2014;384:189-205.
4. Noritz G, Murphy N. Motor delays: Early
identification and evaluation. Pediatrics. 2013;131:e2016-27.
5. Ministry of Health & Family Welfare. Rashtriya Bal
Swasthya Karyakram (RBSK), Child Health Screening & Early Intervention
Services Under NRHM: Operational Guidelines. Delhi: Government of India;
2013.
6. Poon JK, LaRosa AC, Pai GS. Developmental delay
timely identification and assessment. Indian Pediatr. 2010; 47:415-22.
7. Robertson J, Hatton C, Emerson E, Yasamy M. The
identification of children with, or at significant risk of, intellectual
disabilities in low- and middle-income countries: A review. J Appl Res
Intellect Disabil. 2012;25:99-118.
8. Ministry of Health & Family Welfare. Rashtriya Bal
Swasthya Karyakram (RBSK), Child Health Screening & Early Intervention
Services Under NRHM: Resource Material. New Delhi: Government of India;
2013.
9. Gulati S, Aneja S, Juneja M, Mukherjee S, Deshmukh
V, Silberberg D, et al. INCLEN Diagnostic Tool for Neuromotor
Impairments (INDT-NMI) for primary care physician: Development and
validation. Indian Pediatr. 2014:51:613-9.
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