Global Update Indian Pediatrics 2005; 42:1065 |
Pedscapes |
Fragile is one of the commonest inherited causes of mental retardation. Some of the websites on this disorder are listed below: March-of-Dimes Foundation - http://www.marchofdimes.com/professionals/681_9266.asp The March of Dimes foundation is a non-profit organization that aims to prevent birth defects. Their Fragile X page contains quick reference fact sheets on the various medical aspects of the syndrome. This site also contains resources for parents, posters and other educational material about the disease. Conquer Fragile X - http://www.conquerfragilex.org/ The conquer fragile X website contains four main sections - ‘all about fragile X’, ‘focus on families’ where families can exchange their experiences, newsletter and ‘focus on research’ which contains information on latest research information about the disease. The National Fragile X Foundation - http://www.fragilex.org/html/what.htm This website provides information to parents and families about fragile X syndrome. Detailed information on clinical features, diagnosis, rehabilitation, online questions and answers and a message board are some of the features of this site. NICHD booklet - ‘Families and Fragile X foundation'’- C. Vidyashankar,
|