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Editorial

Indian Pediatr 2014;51: 607-608

Diagnostic Tool for Neuromotor Impairment for Primary Care Physician
Health Policy Perspective


Harish Kumar and Deepti Agrawal

From the UNDP-NIPI Newborn Project, 71 Lodhi Estate, New Delhi 110 003, India.
Email: [email protected]


D
evelopmental delay refers to children who experience significant variation in the achievement of expected milestones for their actual or adjusted age. Developmental delays are caused by poor birth outcomes, inadequate stimulation, malnutrition, chronic ill health and other organic problems, psychological and familial situations, and other environmental factors. While developmental delay may not be permanent, it can provide a basis for identifying children who may experience a disability [1]. The average global prevalence of moderate and severe disability is about 5% in children aged 0-14 years; it is more common among children in the low- and middle-income countries [2]. As the Millennium development goal era comes to an end, the health policy focus post-2015 is widening beyond survival to include wellbeing and human capital, with increasing importance of disability, non-communicable diseases and mental health [3]. Early identification of children with developmental delay or disabilities allows for timely referral for developmental interventions as well as diagnostic evaluations and treatment planning [4]. It also has the potential to provide much needed epidemiological data for development of policies, strategic planning, identification of key interventions, and service provision.

The Ministry of Health and Family Welfare, Government of India, in 2013, launched the national programme for ‘Child Health Screening and Early Intervention Services’, referred to as Rashtriya Bal Swasthya Karyakram (RBSK). This program aims to screen children – throughout the ages 0-18 years – for 4Ds: defects at birth, deficiencies, diseases, and developmental delays and disabilities. Neuromotor impairment is included as one of the thirty health conditions for which identification and early intervention services are to be provided. Currently, the approach is to conduct screening for children aged between 6 weeks and 6 years, twice a year, at the community level (Anganwadi Center) by District Mobile Health Team, comprising of AYUSH-qualified medical officer and paramedics. Children requiring confirmation of diagnosis and further treatment are referred to District Early Intervention Centers (DEIC) that are currently in the process of being established at the level of district hospitals [5]. DEIC is envisaged as first referral unit where a team of service providers – consisting of a pediatrician, medical officer, dentist, staff nurses, technicians and paramedics – is positioned to respond to child’s immediate needs, conduct diagnostic tests feasible at secondary level of care, facilitate linkages to tertiary level facilities where required, and ensure follow up.

A number of screening tools for assessment of developmental delay and disability in children in various settings have been described in literature [6,7]. Under RBSK, tools for screening children for 4Ds have been included [8]. The INCLEN Diagnostic Tool for Neuromotor Impairment (INDT-NMI) [9] is a welcome addition to the limited armamentarium available with providers involved with the identification and management of children with developmental delays and disabilities, and has the potential for use ‘at scale’ in the national program.

INDT-NMI has been validated for use amongst 2-9 year-old children presenting to pediatric neurology outpatient clinic at tertiary care centers, most likely after screening and referral by public and private providers. A similar context exists at the DEIC where medical graduates and/or pediatricians are positioned to carry out basic level of assessment (tests for neurological impairment, hearing, vision) and provide physical, occupational and/or speech therapies and rehabilitative care. Thus, INDT-NMI is timely and relevant in the programmatic setting as a tool to assist in diagnosis and categorization of neuromotor impairment at first referral center (DEIC) with high degree of specificity, making early commencement of interventions possible. Other merits of the tool developed by INCLEN are short duration of training, administration time of 20-25 minutes, and no requirement for special equipment. These are important considerations given that a large number of primary care physicians and pediatricians are likely to be involved in provision of services under RBSK.

However, it may not be feasible to use INDT-NMI tool at community level with the existing level of skills of District Mobile Health Team and paucity of time due to large number of children (150-200) screened at one or more sites in a single day. Also INDT-NMI has been evaluated in tertiary care settings, where graduate physicians are likely to be better informed and motivated than primary care physicians in the peripheral public health system. Therefore, a pragmatic trial, with INDT-NMI being administered by primary care physicians in field settings with less intense supervision, would provide a realistic assessment of its application and training requirements. The results can be used to advocate its use as the standard diagnostic tool within the national program.

Funding: None; Competing interest: None stated.

References

1. World Health Organization, UNICEF. Early Childhood Development & Disability: A Discussion Paper. Geneva: WHO Press; 2012.

2. World Health Organization. The Global Burden of Disease: 2004 Update. Geneva: World Health Organization Press; 2008. Available from: http://www.who.int/healthinfo/global_burden_disease/GBD_report_2004update_part3.pdf. Accessed July 14, 2014.

3. Lawn J, Blencowe H, Oza S, You D, Lee A, Waiswa P, et al. Every newborn: progress, priorities, and potential beyond survival. Lancet. 2014;384:189-205.

4. Noritz G, Murphy N. Motor delays: Early identification and evaluation. Pediatrics. 2013;131:e2016-27.

5. Ministry of Health & Family Welfare. Rashtriya Bal Swasthya Karyakram (RBSK), Child Health Screening & Early Intervention Services Under NRHM: Operational Guidelines. Delhi: Government of India; 2013.

6. Poon JK, LaRosa AC, Pai GS. Developmental delay timely identification and assessment. Indian Pediatr. 2010; 47:415-22.

7. Robertson J, Hatton C, Emerson E, Yasamy M. The identification of children with, or at significant risk of, intellectual disabilities in low- and middle-income countries: A review. J Appl Res Intellect Disabil. 2012;25:99-118.

8. Ministry of Health & Family Welfare. Rashtriya Bal Swasthya Karyakram (RBSK), Child Health Screening & Early Intervention Services Under NRHM: Resource Material. New Delhi: Government of India; 2013.

9. Gulati S, Aneja S, Juneja M, Mukherjee S, Deshmukh V, Silberberg D, et al. INCLEN Diagnostic Tool for Neuromotor Impairments (INDT-NMI) for primary care physician: Development and validation. Indian Pediatr. 2014:51:613-9. 

 

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